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Welcome to the
Pooled Resource Open-Access ALS Clinical Trials Database
Data Sets

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In building PRO-ACT, as part of our data cleaning process for the lab data, units were converted, synonymous tests appearing with different names were merged, and some indecipherable data (less than 1%) were removed (see full list of cleaning changes here ).

Form Name Subjects Records Values Date/Time
Adverse Events 9568 81234 814583 6/3/2025 11:08:37 PM
ALL FORMS 12504 3665331 17014329 6/3/2025 11:41:11 PM
ALSFRS(R) 8538 73845 985895 6/3/2025 11:10:53 PM
Concomitant Medications 9349 136072 528304 6/3/2025 11:11:53 PM
Demographics 12504 12504 50815 6/3/2025 11:28:14 PM
El Escorial criteria 4243 4243 8485 6/3/2025 11:29:09 PM
Family History 1360 1424 5743 6/3/2025 11:29:51 PM
Forced Vital Capacity 9090 49110 202162 6/3/2025 11:30:43 PM
Handgrip Strength 1428 19032 172495 6/3/2025 11:31:31 PM
Laboratory Data 10103 2937162 11366563 6/3/2025 11:32:10 PM
Mortality 5038 5043 8579 6/3/2025 11:35:25 PM
Muscle Strength 1522 204875 1840381 6/3/2025 11:36:48 PM
Riluzole use 10253 10363 20696 6/3/2025 11:37:28 PM
Slow Vital Capacity 4294 21115 103435 6/3/2025 11:38:15 PM
Subject ALS History 11100 13765 44646 6/3/2025 11:38:56 PM
Treatment Group 10823 10823 18367 6/3/2025 11:39:40 PM
Vital Signs 11075 84721 843180 6/3/2025 11:40:17 PM