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Welcome to the
Pooled Resource Open-Access ALS Clinical Trials Database
Data Sets

Please register to be able to download data.

In building PRO-ACT, as part of our data cleaning process for the lab data, units were converted, synonymous tests appearing with different names were merged, and some indecipherable data (less than 1%) were removed (see full list of cleaning changes here ).

Form Name Subjects Records Values Date/Time
Adverse Events 9330 79819 802869 9/20/2024 9:40:53 PM
ALL FORMS 12229 3551882 16374769 9/20/2024 9:40:53 PM
ALSFRS(R) 8263 72058 957849 9/20/2024 9:40:53 PM
Concomitant Medications 9074 132212 504020 9/20/2024 9:40:53 PM
Demographics 12229 12229 50370 9/20/2024 9:40:53 PM
El Escorial criteria 3970 3970 7940 9/20/2024 9:40:53 PM
Family History 1092 1156 4530 9/20/2024 9:40:53 PM
Forced Vital Capacity 9090 49110 202162 9/20/2024 9:40:54 PM
Handgrip Strength 1236 16274 144917 9/20/2024 9:40:54 PM
Laboratory Data 9834 2866861 11103284 9/20/2024 9:40:54 PM
Mortality 4992 4993 8479 9/20/2024 9:40:54 PM
Muscle Strength 1318 176258 1582828 9/20/2024 9:40:54 PM
Riluzole use 10032 10051 20288 9/20/2024 9:40:54 PM
Slow Vital Capacity 4055 20079 98311 9/20/2024 9:40:54 PM
Subject ALS History 10825 13490 46186 9/20/2024 9:40:54 PM
Treatment Group 10548 10548 18092 9/20/2024 9:40:54 PM
Vital Signs 10800 82774 822644 9/20/2024 9:40:54 PM