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Welcome to the
Pooled Resource Open-Access ALS Clinical Trials Database
Data Sets

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In building PRO-ACT, as part of our data cleaning process for the lab data, units were converted, synonymous tests appearing with different names were merged, and some indecipherable data (less than 1%) were removed (see full list of cleaning changes here ).

Form Name Subjects Records Values Date/Time
Adverse Events 10079 84048 841861 1/29/2026 9:27:03 PM
ALL FORMS 13115 3944118 18333775 1/29/2026 9:27:03 PM
ALSFRS(R) 9149 81229 1089263 1/29/2026 9:27:03 PM
Concomitant Medications 9960 147147 591391 1/29/2026 9:27:03 PM
Demographics 13115 13115 54224 1/29/2026 9:27:03 PM
El Escorial criteria 4854 4854 9463 1/29/2026 9:27:03 PM
Family History 1360 1424 5743 1/29/2026 9:27:03 PM
Forced Vital Capacity 9090 49110 202162 1/29/2026 9:27:03 PM
Handgrip Strength 1428 19032 172495 1/29/2026 9:27:03 PM
Laboratory Data 10714 3149505 12178819 1/29/2026 9:27:04 PM
Mortality 5111 5116 8725 1/29/2026 9:27:04 PM
Muscle Strength 1889 226263 2007094 1/29/2026 9:27:04 PM
Neurofilament 814 3681 18405 1/29/2026 9:27:04 PM
Riluzole use 10812 10961 21892 1/29/2026 9:27:04 PM
Slow Vital Capacity 4905 33813 164576 1/29/2026 9:27:04 PM
Subject ALS History 11656 14321 47421 1/29/2026 9:27:04 PM
Treatment Group 11434 11434 19589 1/29/2026 9:27:04 PM
Vital Signs 11686 89065 900652 1/29/2026 9:27:04 PM