PRO-ACT logo RegisterLog in ALS Association logo Neurological Clinical Research Institute
Welcome to the
Pooled Resource Open-Access ALS Clinical Trials Database
Data Sets

Please register to be able to download data.

In building PRO-ACT, as part of our data cleaning process for the lab data, units were converted, synonymous tests appearing with different names were merged, and some indecipherable data (less than 1%) were removed (see full list of cleaning changes here ).

Form Name Subjects Records Values Date/Time
Adverse Events 8799 76055 763571 7/29/2022 4:58:34 PM
ALL FORMS 11675 3369706 15515491 7/29/2022 5:00:55 PM
ALSFRS(R) 7712 67612 890345 8/1/2022 9:39:36 PM
Concomitant Medications 8521 125139 462288 8/1/2022 9:43:23 PM
Death report 4874 4875 8307 8/1/2022 9:46:06 PM
Demographics 11675 11675 44162 8/1/2022 9:46:51 PM
El Escorial criteria 3416 3416 6832 8/1/2022 9:55:21 PM
Family History 1039 1103 2516 8/1/2022 9:56:34 PM
Forced Vital Capacity 9090 49110 202162 8/1/2022 9:57:22 PM
Handgrip Strength 1236 16274 144917 8/1/2022 9:59:09 PM
Laboratory Data 9280 2712589 10496429 8/1/2022 10:00:29 PM
Muscle Strength 1255 175461 1576452 8/1/2022 10:01:35 PM
Riluzole use 9478 9478 18934 8/1/2022 10:02:24 PM
Slow Vital Capacity 3501 15739 75183 8/1/2022 10:04:07 PM
Subject ALS History 10271 12936 39343 8/1/2022 9:41:23 PM
Treatment Group 9994 9994 17538 8/1/2022 10:04:43 PM
Vital Signs 10247 78250 766382 8/1/2022 10:05:27 PM